The goal of this website is to share information and provide support for all women who suffer from chronic pelvic pain.
Hi, I'm Alex. I've had chronic pelvic pain for nearly 10 years now and it’s been an experience that has shaped much of my life. In many ways, it’s been a negative driving force in my life: I’ve been frustrated by the lack of quality information that I was able to find on the topic and often devastated by the feeling that I was alone in what I was going through. In an attempt to give this experience some positive meaning, however, I decided made this website. I wanted to make this website a space where women with pelvic pain could come to share information and to be a place to find unconditional support about living with a chronic pain illness.
I've had chronic pelvic pain for several years. It started out as occasional mild pain and progressed to involve my entire pelvis, effecting both basic activities of daily living (like sitting, going to the bathroom) and my responsibilities (such as school).
Part of the initial problem actually stemmed from the response I got from health care professionals: I saw multiple doctors, who knows how many registered nurses, and two physician's assistants before someone talked to me about chronic pain syndromes. I was given countless prescriptions for ibuprofen and was clearly deemed an annoying patient when I said that it didn’t do much for the pain. I tried all sort of other medications, from birth control to sedatives, that were prescribed to me and scoured the internet for ointments, stretches, and relaxation techniques that I found. It wasn’t a pretty process, but I started finding things that helped me improve. I slowly found doctors and physical therapists who worked patiently on helping me find a combination of things that worked for me personally and I’ve learned that my wellbeing is something that will always require constant effort on my part. That’s not to say that I’ve gotten all better—I still have some pain most days but it’s a vast improvement from where I used to be.
Like I said above, my struggle with chronic pelvic pain has been a major shaping force in my life--and in many ways a negative one. In retrospect, however, it’s guided my life in some positive ways as well. While I ended up getting a college degree in music, I made the decision to go to medical school after graduation and am continually striving to become the kind of doctor that can provide quality, compassionate care to people living with chronic pain.
The other positive outcome of my experience with chronic pelvic pain is the premise of this website: while going through so many unsuccessful treatments was painful, I did end up learning a lot that I can now share with other women. I also know that my story is not unique! Which is why I feel that it’s so important for there to be a space where we can all learn from each other.
So, welcome! I’m excited to see our community continue to grow and develop as we share information and provide one another with love and support!